Lupus Survivor

Our mission is to empower fellow lupus survivors by sharing our own perspectives on the impact chronic illness has had on our lives to promote a holistic approach to managing the impact of our disease. Our content is focused on exploring patient perspectives on the impact of chronic illness on three areas: the mind, the body, and the spirit.

Are you a Lupus Survivor? seeks contributions. Please read the instructions below for details on sharing your story.

Our mission is to empower fellow lupus survivors by sharing our own perspectives on the impact chronic illness has had on our lives. There are plenty of resources that provide medical explanations for these illnesses and the medications as they relate to the patient; however, there is a void for awareness of the effects on the person (not the patient) as a whole. The intent of this site is to get personal and reveal what will not be found on any medical charts. Our initial goal is to tell stories of how we survived. Provide information to others on how to survive. Collectively we hope to influence our community — our doctors and caregivers on what we need to survive with a more holistic approach to achieving wellness. Beyond general awareness of this chronic autoimmune disease, we want to create a greater awareness of the psychosocial ramifications of chronic illness that doesn’t often get addressed by doctors. We believe that healing must address the mind, the body, and the spirit to ensure a better quality of life for the Lupus Survivor

Please read the entire mission in order to understand the purpose and context of the content of

So to begin this journey, needs contributions from survivors. There are 3 avenues you may take to share as a survivor:

1. Survivor Story: Share an anecdotal narrative about surviving lupus. Keep in mind the context of our mission.  Submit here
2. Survivor Tips: Write an intelligent article on a specific survival tip within the context of our mission.  Submit here
3. Survivor Bloggers: Become a regular contributor. If you already have a blog share your content that supports our mission and we will link back to your website. Submit sample post and link.

The survivor stories do not necessarily have to be a life and death situations. It’s very important that we discuss even the mundane.

How do you survive living with lupus on a day to day basis?
How do you deal with giving up a career for disability?
What are your suggestions for surviving the disability application process?
What are you doing to survive the financial difficulties incurred due to illness?
What tips do you have for surviving with the minimum spoons (energy expenditure)?
How do you survive getting up to go to work every day despite the pain?
How have your relationships with husband, family, and friends survived?
How did you survive the relationship you lost due to illness?
Are you struggling to survive with the unrelenting pain?
What tips do you have to survive with lupus fog?
How do you survive with aphasia?
Are you barely surviving the effects of the steroids on your behavior and personality?

I would especially like to focus on the mostly overlooked neuro-psychiatric aspect of these illnesses. These a issues may be some of the most devastating yet not addressed by traditional medicine.

Submit Your Lupus Survivor Story Now!

Please take the time to share. You do not have to be a professional writer, just sincere. You may use an alias for your submission for your privacy.

Submission Form