Hi, my name is Denise I have Lupus (SLE) since 2004, I also have Sjogrens, Raynauds, RA, Diabetes, OA, Neuropathy, DDD, Herniated disk in my lower and upper back, I have sleep apnea too. I have thyroid problems and been having seizure symptoms and TIAs since 04 I was in and out of hospitals because of it. I was on Gabapentin for 6 years and my Neurologist said he, would wean me off it because he thought maybe that was why I was having the symptoms of TIAs and Seizures. Well, he was right I am so glad I got off that medicine I have not been in the hospital for over a year since being taken off that medicine. I have been in and out of a wheelchair since 2003. Since 2011 I have been back in the wheelchair. I used to dance ballet and Jazz and tap for 20 years. I fought for SSDI it took two-in-a-half years to get accepted.
In January 2013 I had a Radical Hysterectomy. Because they suspected I had uterine I think of all the changes in my life through the years and sometimes I feel like it is not my life, sometimes I wake up in the middle of the night and think this is a nightmare, but it is not, it is my life. I have had to accept it. Writing helps me accept my life as it is.
I wrote my story to let others know that no matter what you have been through, that you can make a good life for yourself. I share about being abused and being a survivor. I share about my sobriety. I stopped drinking in 1995. I share about finding my birth mom. I share about my loving husband. He is such a sweet heart. My husband and I met before I was ill. Are relationship has been wonderful and very hard because of Lupus, I feel our relationship is growing stronger because we both take time for each other and we listen to each other. Lupus has taught me to communicate and talk things out better. Communication is important; I have a peace in my life today.
I am a Lupus advocate here online. I enjoy sharing with others helping others. Life is short so I feel we should enjoy each other’s company and help each other. God brings the right people into our lives for a reason. To read my story. “Thank you God. One Lady’s Journey Within.”
Here is my new blog Where I share poems and more.
The reason I write is because I want to share with others that no matter how bad our life may have been we can have a good life. We are able to live and be happy. I am so glad to be able to share with you. Denise Love