Denise ‘s Lupus Survivor Story

Hi my name is Denise I have Lupus (SLE) since 2004, I also have Sjogrens, Raynauds, RA, Diabetes, OA, Neuropathy, DDD, Herniated disk in my lower and upper back, I have sleep apnea too. I have thyroid problems and been having seizure symptoms and TIAs since 04 I was in and out of hospitals because of it. I was on Gabapentin for 6 years and my Neurologist said he, would wean me off it because he thought maybe that was why I was having the symptoms of TIAs and Seizures. Well he was right I am so glad I got off that medicine I have not been in the hospital for over a year since being taken off that medicine. I have been in and out of a wheel chair since 2003. Since 2011 I have been back in the wheel chair. I used to dance ballet and Jazz and tap for 20 years. I fought for SSDI it took two in a-half years to get accepted.

In January 2013 I had a Radical Hysterectomy. Because they suspected I had uterine I think of all the changes in my life through the years and some times I feel like it is not my life, some times I wake up in the middle of the night and think this is a nightmare, but it is not, it is my life. I have had to accept it. Writing helps me accept my life as it is.

I wrote my story to let others know that no matter what you have been through, that you can make a good life for yourself. I share about being abused and being a survivor. I share about my sobriety. I stopped drinking in 1995. I share about finding my birth mom. I share about my loving husband. He is such a sweet heart. My husband and I met before I was ill. Are relationship has been wonderful and very hard because of Lupus, I feel our relationship is growing stronger because we both take time for each other and we listen to each other. Lupus https://www.acheterviagrafr24.com/vente-viagra-pharmacie-je/ has taught me to communicate and talk things out better. Communication is important; I have a peace in my life today.

I am a Lupus advocate here on line. I enjoy sharing with others helping others. Life is short so I feel we should enjoy each other’s company and help each other. God brings the right people into our lives for a reason. To read my story. “Thank you God. One Lady’s Journey Within.”

Here is my new blog Where I share poems and more.
The reason I write is because I want to share with others that no matter how bad our life may have been we can have a good life. We are able to live and be happy. I am so glad to be able to share with you. Denise Love

9 thoughts on “Denise ‘s Lupus Survivor Story”

  1. Wow. Sounds like you been through a lot. The good thing is you remain positive. My wife has lupus. Thanks for sharing.

  2. Thank you so much for sharing! I have almost everything you have too. My question is (or vent?) I’ve been married for 32 years and loved spoiling my family. I’ve worked my way up the corporate ladder while still being a great mom and wife, auntie, daughter, etc… I’ve lost a lot of friends and am very lonely. My amazing husband rolled his eyes when I asked him for a cup of tea yesterday. This was more painful than my chronic ridiculous pain. I’m hurt and wish I never had to ask for help ever again. My sadness is getting the best of me…

  3. I sure do understand my family doesn’t get it, unless I really have a bad spell. I know it s tough on my kids , the youngest is 17, the oldest 33. The oldest 2 have their own families. Son & daughter.? My two youngest living with me. My husband and I got s divorce after 21 years. He is still good to me & he is my family. We grew up together. He doesn’t get it when I say I am in pain or tell him what happened at Dr’s appt. He does text everyday see how I feel. I feel like if I really tell him he think I exaggerate . So does the rest of the family. Don’t get me wrong they love me, especially my aunt and mom. I still feel alone, lonely, even with a large family . My granddaughters make me smile and feel loved. I usually see them on the weekend. I have SLE , fibro , and some other stuff. It’s one thing or another . I seem to have a lot of pain, it just moves around a lot . I am so blessed in many ways, I feel like I shouldn’t feel sorry for myself. I have not had as many hospital stays as many of you. You are all brave, I feel so much better after reading your stories. I hope I can share something that helps someone else. This is only my second time sharing . Hopefully I get to be a better writer . Excuse punctuation, and my run on sentences.
    God bless all of you, keep writing please. You ladies are so inspiring .
    By for now, Mari

  4. I sure do understand my family doesn’t get it, unless I really have a bad spell. I know it s tough on my kids , the youngest is 17, the oldest 33. The oldest 2 have their own families. Son & daughter.? My two youngest living with me. My husband and I got s divorce after 21 years. He is still good to me & he is my family. We grew up together. He doesn’t get it when I say I am in pain or tell him what happened at Dr’s appt. He does text everyday see how I feel. I feel like if I really tell him he think I exaggerate . So does the rest of the family. Don’t get me wrong they love me, especially my aunt and mom. I still feel alone, lonely, even with a large family . My granddaughters make me smile and feel loved. I usually see them on the weekend. I have SLE , fibro , and some other stuff. It’s one thing or another . I seem to have a lot of pain, it just moves around a lot . I am so blessed in many ways, I feel like I shouldn’t feel sorry for myself. I have not had as many hospital stays as many of you. You are all brave, I feel so much better after reading your stories. I hope I can share something that helps someone else. This is only my second time sharing . Hopefully I get to be a better writer . Excuse punctuation, and my run on sentences.
    God bless all of you, keep writing please. You ladies are so inspiring .
    By for now, Mari

    1. Mari,
      Sorry I have not replied ty for your comment. Share from your heart likeyou didhere. You cannot go wrong shsring from your hear and your experience. God Bless

  5. Denise, you have been a wonderful friend to me, and a lupus sister. One day we will be able to sit down, and talk about our lupus adventures, and lupus will be a thing of the past. Just years ago they thought it was all in our heads. Now we have medication, soon a cure! Thanks for your positive thoughts every day! Love you!

  6. You are precious in God’s sight and ours. Your life is a life full of radical tests. Yet, this testimony does help many. So proud of you for continuing to keep your hand to the plow. I wish it weren’t a similar story. But it is. Thanks for being courageous and full of His love by sharing and caring.

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